Local staffer gives updates from AAIC16

IMG_6875This week, more than 5,500 Alzheimer’s researchers and Alzheimer’s Association staff are in Toronto, Canada for the 2016 Alzheimer’s Association International Conference. More than 20 researchers from Southeast Florida are attending and nine are presenting. Also in attendance is one of our very own staff, Micheal Pearson who is the Vice President of Programs and Public Policy. Micheal has been sending updates from the event each day. Check them out below.

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St. Anthony Catholic School students raise more than $1,000 for Alzheimer’s

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(L to R) Amy Jones, Molly’s mom; Tom Jones, Molly’s father; Molly Jones; Corrie LeMay, Development Manager for the Boca and Broward Walks; and Mandy Cerrone, Molly’s 7th grade teacher pose at the Broward Alzheimer’s Association office.

When 7th grader Molly Jones was asked to think of a topic for an end of year service project at her school, she didn’t have to think long.

Molly’s grandmother, a former principal of her school, was diagnosed with Alzheimer’s before Molly was born. She wanted to raise money for the cause and educate her classmates on the neuro-degenerative disease. She was surprised by all the support from her peers she received. She and her classmate Christian Mote lead the service project.

“Our classmates jumped on board,” she said.

Her service project group decided to do a “purple dress” day fundraiser for Alzheimer’s. Students were allowed to dress out of uniform and wear purple for a day for $5. Molly, Christian and their classmates went around the school collecting money from those who dressed in purple and explained to the classes what Alzheimer’s disease is.

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Molly Jones and her teacher Mandy Cerrone present a check to Corrie LeMay at the Broward Alzheimer’s Association Southeast Florida office.

Molly expected the event to be successful but never expected it to raise more than $1,000. Her teacher was not surprised though.

“Molly was a great leader,” said Mandy Cerrone. “The students and I saw how passionate she was for this cause.”

The money raised will go to the Broward Walk to End Alzheimer’s. Jones and her family have been involved with the Broward Walk to End Alzheimer’s held in Hollywood for a couple years and plan to go every year. This year’s walk will be on Oct. 22 at Hollywood North Beach Park. Find out more about how you can get involved with your local walk by going to alz.org/walk. Find out more about Alzheimer’s and our programs at alz.org/seflorida or by calling our 24/7 Helpline number, 800.272.3900.

Join us at a Paint the Town Purple event

Next week, the Alzheimer’s Association Southeast Florida Chapter will host Paint the Town Purple events throughout Southeast Florida. June is Alzheimer’s and Brain Awareness Month, and these events aim to raise Alzheimer’s Awareness in our communities. Find an event near you, and join us.

Take a spin at Downtown at the Gardens

Invitation to Downtown at the Gardens on SaturdayHead to Downtown at the Gardens to ride the carousel on Saturday June 25 and raise awareness and funds for Alzheimer’s. All proceeds from the coin machine next to the carousel on that Saturday will go to the Alzheimer’s Association Southeast Florida Chapter.

 

Sailfish Fountains, Lady Abundance and the Roosevelt Bridge go purple for Alzheimer’s

Invitation to stuart lighting

Come out Mulligan’s Beach House in Stuart,  61 SW Osceola Street, for appetizers on Monday, June 27, and  then join us as we head over to see the the Sailfish Fountain, Lady Abundance and the Roosevelt Bridge turn purple for Alzheimer’s. We will be at Mulligans from 6 to 8 before walking to the lightings. RSVP to Jennifer Braisted 561-967- 0047 or jbraisted@alz.org.

Freedom Tower, Miami Tower and InterContinental Hotel go purple for Alzheimer’s

Invitation to Miami invitation

On Tuesday, June 28 the Miami Tower, Freedom Tower and the InterContinental Hotel will turn purple to raise Alzheimer’s awareness. Join us for light appetizers at Hard Rock Café Miami at Bayfront Park from 5 to 8 p.m. before we walk over to see the lightings. RSVP to Jennifer Braisted 561-967- 0047 or jbraisted@alz.org.

Bank of America goes purple for Alzheimer’s in Ft. Lauderdale

Invitation to Bank of America lighting

Join us at Alex and Ani, 1012 Las Olas Boulevard, on Wednesday, June 29 from 5 to 8 p.m. for light appetizers before heading over to see the Bank of America Building going purple. RSVP to Jennifer Braisted 561-967- 0047 or jbraisted@alz.org.

 

CityPlace goes Purple for Alzheimer’s in downtown West Palm Beach

Invitation to cityplace lightingJoin us at Mellow Mushroom in CityPlace, 700 S Rosemary Ave, on Thursday, June 30 from 5:30 to 8:30 p.m. for light appetizers before heading over to see the CityPlace fountains go purple. RSVP to Jennifer Braisted 561-967-0047 or jbraisted@alz.org.

Go purple this month for Alzheimer’s Awareness

This June, go purple for Alzheimer’s.11924772_841409865978362_5081367608228824160_n

June is Alzheimer’s Brain and Awareness Month, and throughout the 30 days the Alzheimer’s Association aims to raise awareness and educate the community about this epidemic. 

During the entire month, the Association will be sharing the 10 warning signs of Alzheimer’s and then on June 20, the longest day of the year, the association will host its second signature event – The Longest Day.

The Longest Day is a sunrise-to-sunset event to honor the strength, passion and endurance of those living with Alzheimer’s disease and their caregivers. The event takes place on June 20, the longest day of the year, but participants can complete an event prior to that date. Participants will complete approximately 16 hours of activity ranging from running, cooking, knitting to playing bridge, to help advance Alzheimer’s care, support and research.

11905788_1019727178059796_3112657969368306695_n - CopyRight after Longest Day, the Southeast Florida Chapter is hosting its second annual Paint the Town Purple event. During the week long event – June 24 to July 1 – landmarks from Stuart down to the Keys will be purple. Landmarks going purple include the Roosevelt Bridge, the Sailfish Fountain in Stuart, the Jupiter Lighthouse, the fountains at Downtown at the Gardens, the fountain at CityPlace, the fountain at Mizner Park, the Bank of America building in Fort Lauderdale, the Miami Tower, Intercontinental Hotel and the Freedom Tower in Downtown Miami.

 “We want people to see purple everywhere and to start to connect that color with our cause. If we raise awareness, we are one step closer to accomplishing our mission,” said Ann May, CEO of the Southeast Florida Chapter of the Alzheimer’s Association.

Alzheimer’s disease is a growing epidemic and the nation’s sixth leading cause of death. More than five million Americans are living with Alzheimer’s, including more than 510,000 Floridians.

If you want information about the disease or need to know about resources available in your area, please call our 24/7 helpline at 800.272.3900.

Find out about our Paint the Town Purple events here.

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GO PURPLE to #ENDALZ

Help us raise awareness this month by:

  1. TURN FACEBOOK PURPLE

    Change your profile picture to raise awareness in June. Click here to learn how.

    turn-fb-purple

  2. SHARE WHY YOU GO PURPLE

    Use hashtags #ENDALZ and #GoPurpleForALZ to let the world know why you go purple in June. See what people are posting

    hashtag-endalz

  3. PUT UP A YARD SIGN

    Share the message with this yard sign. Pick one up today from one of our offices.

    Paint the Town Purple - Yard Sign.jpg

  4. COME OUT TO A LIGHTING

    Follow us on Facebook and come out to see a building near you go purple.

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  5. START A TEAM

    Start a Longest Day team. Register today.

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Mother’s Day is day to make, cherish memories

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Brittany and her mom pose for a photo.

Mother’s Day is the one day a year where we show our mom a little extra attention and love. We pamper and shower her in hugs, kisses and gifts, creating everlasting memories together.

But with a mom with Alzheimer’s disease, the holiday is different. My mom doesn’t remember the flowers and all the sticky crafts I gave her. She doesn’t remember the smell of breakfast and coffee lingering from the kitchen. And she doesn’t remember the cheesy Mother’s Day cards we picked out.

IMG_1025 (1)I wish she could remember walking into our messy kitchen as my brother and I attempted to bake a cake for her. I wish she could remember the smile on my face when I finally saved up enough money to buy her a picture frame and make her favorite chocolate cake – not burnt this time. I wish Alzheimer’s didn’t take her away so quickly.

This Mother’s day, I will visit my mom at a nursing home. I will wear a name-tag and tell her all the stories from previous Mother’s Days. I will wait for a response to my stories, knowing no words will come from her mouth but hoping for a smile letting me know she is listening.

As I hold her hand, I will remember when she held mine through the good and tough times, as a mother should. I will realize how much she has taught me in a short amount of time. Mother’s Day has not been easy for me these past nine years.

I wish she could be here for when it’s my turn to celebrate my own Mother’s Day. I wish she would be there watching me react to eating a burnt piece of cake and attending Mother’s Day events in school  like she for me.

As I sit with my mom this year all grown up, I will remember what Mother’s Day is all about, showing our moms a little extra love and attention one day a year.  Although my mom won’t remember, I will.

Happy Mother’s Day Mom! I love you!

Brittany Carel

Brittany is a intern with the Alzheimer’s Association Southeast Florida Chapter and a student at Florida Atlantic University.

How my grandmother lost her language, and so did I

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Lyssa Goldberg’s grandparents pose for a photo in Havana, Cuba in the mid-1950s.

By Lyssa Goldberg, Guest writer

What a happy couple. They’re sitting on a boat, captured in a moment of nautical bliss — posed, smiling, and unrecognizable. Jaime with his sailor’s hat, clean-shaven aside from a thick mustache, and Gela by his side, with a pair of maracas in her hand as she leans against him.

In Jaime’s left hand is a pair of sunglasses flung casually to the side, while his right hand caresses Gela’s neck. The void between where their heads and shoulders unite creates a diamond-shaped window into another world: mid-1950s Havana, before Fidel Castro came to power.

I’m looking, really looking, at this photo that my uncle found after searching through my grandparents’ emptied home last Thanksgiving. I’ve seen black-and-white photos of them before. But here in this picture, and now especially, they look so different from the grandparents I grew up with.

Frankly, his hair cut was still the same, and I recognize the curve of her nose that she passed on to me, but there’s a spark in my grandfather’s eyes I never saw in the 20 years that I knew him. So much has changed. He’s gone now, for starters, and her memory is gone now, too.

I bet they didn’t speak a word of English back then. It doesn’t seem like they had any clue they’d need to — that is, to leave all their belongings behind in Havana, take only their one- and two-year-old sons and their wedding rings with them, and learn the English language in order to build a new life in the United States. A few decades earlier, both of their parents had done the same when they had to leave Eastern Europe and start families in Cuba.

My grandfather learned to speak English — I know he did — but the stubborn, old Cuban man that he was, he loved to refuse to speak it.

“How are you today, sir?” a cashier at Publix might ask him. After he retired, he went to Publix almost every day.

On a good day, he might half-smile back uncomfortably, tightening his mustache into a bundle, and then walk out with his grocery bags full of two-for-one cupcakes and 2-liter soda bottles.

With me, he was curt, but at least he tried.

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Lyssa Goldberg ‘s Wita smiling at Miami Jewish Home

“You have no school today?” he would ask me every weekend.

“No, I’m off today, but I have a lot of homework to do,” was my go-to response.

“You go on Monday?”

“Yep,” I’d say and smile back, worried that if I said too much, he wouldn’t understand.

My grandmother used to speak English perfectly, but she barely speaks it anymore.

Our conversations nowadays go something like this:

“Wita, how are you? Did you enjoy lunch?”

I couldn’t say Abuelita when I was little, so I took the liberty of shortening it, and Wita stuck.

“Sí, creo que la novia no se parecen en labios.” 

Translation: Yes, I think that the bride does not appear on the lips. I never learned to speak Spanish fluently, but I know enough to understand that she’s only speaking nonsense.

“What bride, Wita? Where did you see a bride?”

“Mine shtivl a bi gezunt.”

Translation: Something about boots and health. I don’t know any Yiddish, and didn’t even realize my grandmother spoke it until the Alzheimer’s got this bad.

“What do you mean, Wita? Are your shoelaces too tight? Do you want to go for a walk?”

“La ventana camina a la tienda sin sombras.” 

Back to Spanish again. It seems she thinks the window walks to the store without shadows.

It’s not uncommon for late-stage Alzheimer’s patients like my grandmother to lose their ability to carry on a conversation. As their cognitive functions decline, language processing skills can become impaired.

Translation: Wita can no longer say what she means.

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Lyssa Goldberg’s grandparents

It’s in these moments that I regret not practicing my Spanish with my grandparents when I’d had the chance. Maybe if I had, I would actually be fluent. And maybe if I truly understood the language, I would be able to unscramble what Wita meant to say, even if her Alzheimer’s stops her from getting all the words right.

During this conversation, we’re probably sitting in rocking chairs in front of the fourth floor TV in the Miami Jewish Home’s Chernin Building, where Wita has lived for four years. Or if it’s a bit earlier in the day, I’m trying to get her to talk to me as she’s still having lunch.

I’ve gathered that the disease takes her mind back to Cuba, especially when she sees my father and calls him her brother. Maybe when she speaks to me in Yiddish, she thinks she’s talking to her mother, who continued to use Yiddish in Cuba the way my own grandparents held on to their Spanish in the United States. When Wita speaks now, however, it’s not merely Spanish or Yiddish. It’s like she’s created her own made-up, mashed-up foreign language that imparts whatever meaning I make of it.

Wita comes to me in my dreams sometimes, speaking to me in English, the way I will always remember her. She stands tall, with a vigor about her that rivals the agile grandmother who used to push me in a stroller from her home to the park nearby. She exudes the same tenderness that she did when she’d visit my house every weekend all the way through early high school.

As I sleep, I talk to her the way I can’t anymore. I tell her about how well I’m doing in college, about to graduate, in fact. But I say that I wish I’d learned all the Spanish I could in 5th Grade when she started teaching me words and phrases after school.

When my grandfather left us last year, it struck me that Wita would never even know she lost her husband. Maybe that’s a good thing. But it also means that now I can’t hear my grandparents hablan en español once a week and hope to pick up new Spanish vocabulary along the way.

The photo of my grandparents that my uncle found had been sitting in a closet filled with memories: boxes of family albums, a foreign coin collection, their assortment of gaudy jewelry. All of these remnants are the traces of my grandparents’ past, the life they lived here while holding onto their love for Cuba.

These mementos shouldn’t have been secrets stuffed inside guayabera pockets. If I had been able to connect with them in their native language, I would’ve known more about my own grandparents and the rest of our family. In Spanish, I could’ve asked them all the questions that their forsaken belongings have now started to answer.

Looking at this photo again, now saved on my phone for me to peek at from time to time, I see more than a happy couple sitting on a boat. I see the direct connection I had to a history I’ve only learned of through textbooks. I see the people whose life experiences it took me too long to be curious about. I see the missed opportunity for real conversation, but I see my motive for putting together the pieces of my family’s story.

Lyssa Goldberg is a writer and editor in South Florida. Lyssa wrote this personal essay about a decades-old photo of her grandparents in Cuba one year after her grandfather, Jaime, passed away. His wife, Gela—Lyssa’s grandmother—had Alzheimer’s in her old age. She has also passed away since this was written.

Get the latest on research, valuable resources at the 2016 Regional Education Conference in Miami

17246088092_e7f56d8c8b_zJoin us at Florida International University Kovens Conference Center on April 14 for the 2016 Regional Education Conference. Whether you are a caregiver for someone with dementia or you work with patients with dementia, this conference has something for you.

The annual conference provides valuable information for people influenced by Alzheimer’s disease, their families and professionals. Renowned dementia experts will share helpful resources and present the latest updates in research.

“This event is a great resource for the community,” said Michael Pearson, Vice President of Programs for the Alzheimer’s Association Southeast Florida Chapter. “Tools and information can make a huge difference for caregivers and professionals, and this conference will give them not only vital resources, but also hope for a brighter future.”

This year’s keynote speakers are James Galvin, M.D, M.P.H. and Holly Cukier PH D. Galvin is a Professor of Integrated Medical Science and Associate Dean for Clinical Research at the Charles E. Schmidt College of Medicine at Florida Atlantic University. He is also the Director of the Institute for Healthy Aging and Lifespan Studies. Cukier is the Research Assistant Professor in the Department of Neurology at the University of Miami’s Miller School of Medicine as well as the Associate Director for the Induced Pluripotent Stem Cell Core at John P. Hussman Institute for Human Genomics.

In addition to the keynote speakers, there will be several breakout sessions during the day-long conference. Pre-registration is required. Tickets will not be sold at the door. 17221914066_e84afea73f_oRegistration is $35 for general admission and $75 for professional admission. CEUs are available for professionals. Respite options are available, but you must RSVP by April 7 to receive the services. Some scholarships to the conference are available for caregivers.

Get more information and register online here or by calling 561-967-0047.

Alzheimer’s caregivers: Get the ‘Tools’ you need at a free workshop at the Kane Center on April 12

 

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They’ve got the tools: Senior care professionals Alice Delevante, R.N., BSN, of Mederi Caretenders; Crystal Collier of the Council on Aging of Martin County; Ron Radcliffe of Senior Helpers; and Laura Zel Kremer, LCSW, of MorseLife are just a few of the panel members who will provide free expertise to Alzheimer’s caregivers at the Kane Center on April 12. 

By Denise Belizar, guest blog writer      

A panel of senior care professionals will be on hand at the Kane Center in Stuart on April 12 to provide expert advice and tools to help those who are caring for a loved one with Alzheimer’s Disease. The “tools” in this case are helpful strategies and devices that caregivers can use to better assist their family members.

The free educational forum, “Everyday Tools and Strategies for Alzheimer’s Caregivers,” will run from 9 a.m. until 2 p.m., and includes complimentary lunch and refreshments. Free respite care will be available on site in the Kane Center’s Adult Day Program. Reservations are being accepted through April 8, and can be made by calling 772-223-7800. The Kane Center is located at 900 SE Salerno Road in Stuart.

“The caregivers are the focus of this event,” says Ron Radcliffe, Chief Operating Officer for Senior Helpers in Stuart. “We’re here to give them real techniques and strategies to enhance the care of their loved one while reducing stress for everyone.”

The educational session’s panel will include a clinical social worker, physical an occupational therapists, an R.N., an adult day care director, and representatives from Medicare and private pay home health companies. Attendees can expect a full day of hands-on demonstrations, as well as sessions covering such topics as sensitivity training, handling challenging behaviors, strategies for effective care and best outcomes, environmental safety, providing structure in the day, body mechanics and more. Prizes will also be raffled off throughout the day.

The event is sponsored by the Alzheimer’s Association, the Council on Aging of Martin County, Levin Home Care, Lifecare Therapy Services, Mederi Caretenders, MorseLife Health System, Rotech Healthcare, Inc., and Senior Helpers. For more information, call 772-223-7800.

 

Getting involved with local walk committee rewarding, fun

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Some of the Broward Walk to End Alzheimer’s committee pose for a photo at last year’s walk.

Volunteers are truly the faces behind the success of our local five Walk to End Alzheimer’s events.

Every walk has a committee that is filled with people willing to put their time and soul into this cause.

Marlene Lieberman has served on a walk committee for the past 15 years. She has been the co-chair of the Miami-Dade Walk to End Alzheimer’s and is now on the Broward Walk to End Alzheimer’s committee. The committee allows her to help put on what she considers an inspiring event and utilize her passion to help those in her community influenced by the disease.

“I know the benefits of the fundraising event, and I see how the walk inspires those who are affected by this awful disease,” she said.

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Bree Beynon and her husband pose for a photo at last year’s West Palm Beach Walk to End Alzheimer’s at CityPlace

Bree Beynon serves as the team recruitment co-chair on the West Palm Beach Walk to End Alzheimer’s committee, and she loves giving back to her committee.

“I feel strongly about volunteering for the Alzheimer’s Association, not only because of the important cause but also because of the people who are involved,” she said. “It’s clear that everyone’s heart is in the best place, and they are passionate about helping our community.”

The committee is composed of different chairs and co-chairs who handle a variety of topics ranging from sponsorship to mission as well as committee members who serve under the chairs. The committees meet once a month to talk about the upcoming walk. All of the walk committees this year, still have room for more members.

If you are interested in volunteering for your local committee or getting more information about being on a committee, please reach out to the walk manager of the walk you are interested in.

For the Treasure Coast or West Palm Beach Walk to End Alzheimer’s committee, reach out to Tricia Williams at 561-967-0047 or by email at twilliams@alz.org. For the Boca Raton or the Broward Walk to End Alzheimer’s committee, reach out to Jessie Brooks at 561-967-0047 or by email at jbrooks@alz.org. For the Miami-Dade Walk to End Alzheimer’s Committee, reach out to Jose Pinera at 561-967-0047 or by email at jpinera@alz.org.

“I recommend getting involved with the walk committee if you are someone who truly feels passionate not only about finding a cure for Alzheimer’s but about supporting those who are currently living with the disease and their families,” Beynon said. “ Anytime we come together as a community to raise awareness and have fun I think we are showing those with the disease that we are not afraid and they are not alone.”

Our walks this year:

Boca Raton – Sept. 25 at Mizner Park Amphitheater in Boca Raton

Treasure Coast – Oct. 1 at Indian RiverSide Park in Jensen Beach

West Palm Beach – Oct. 8 at CityPlace in West Palm Beach

Broward – Oct. 22 at Hollywood North Beach Park in Hollywood

Miami-Dade – Nov. 5 at Museum Park in Miami

For more information, visit alz.org/walk.

Advocate Spotlight: Doris Sanders

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Representative Gayle Harrell (left) poses with Doris Sanders (right) at the Sage Awards

 

At the Alzheimer’s Association Southeast Florida Chapter, we have the extraordinary honor to serve our community and work with amazing volunteers. These volunteers help us get closer and closer to our vision of a world without Alzheimer’s.

Today, we are shining a light on one of our incredible advocates, Doris Sanders. Doris is a former full-time caregiver to her husband Joe, and since his passing, she has become a full-time advocate for the Alzheimer’s Association.

She currently serves as the Ambassador to Patrick Murphy. In this capacity, she updates the Congressman and his staff about issues relating to Alzheimer’s disease. She also advocates for an increase in research funding and legislation that helps caregivers and individuals living with Alzheimer’s.

Doris’ work led to the Congressman signing on to the HOPE for Alzheimer’s Act  and lending his support to a monumental increase of $350 million in NIH research funding for Alzheimer’s.

She also has worked to make Alzheimer’s a priority here in the state of Florida. She just recently attended our Rally in Tally event to advocate for research funding and an increase in funding for respite services. There are over 1 million unpaid caregivers in the state of Florida. As former full-time caregiver, Doris knows the toll the disease takes on all those involved.

Even though the reward of volunteerism is bringing awareness to a cause, Doris has also been rewarded by her community for her outstanding advocacy efforts. She won the Area Agency on Aging Prime Time Award in 2014; she was a finalist for TC Palm’s Healthcare Champions Award in 2015; and she most recently was nominated for a SAGE Award.

A big thank you to Doris Sanders for all she does for our cause!